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    • Ms symptoms forum uk. Hank_Dogs 10 March 2025 14:37 1.

  • Ms symptoms forum uk I was kept in and an mri was done first thing the next morning with a view to operate. The MS PEOPLE UK Forum Support, help, advice and information for Multiple Dec 6, 2024 · All multiple sclerosis DMTs are much the same muchness tbf, they aim is to stem the progession of the disease, it’s worth trying them out at least. It comes and goes nothing has helped Im always extreamly Community discussion for support and asking about MS symptoms, diagnosis, treatments. I ended up in A&E last week having been sent there by 111 after I couldn’t get a GP appointment. Multiple Sclerosis – UK Limited, trading as MS-UK Company Number: 2842023. I have done my research and my symptoms match late onset MS with little doubt ( over balancing, clumsiness, intention tremor as well as migraines that I’ve had for years but recently have worsened. And that the devilish MS symptoms ease off. Our forum is a welcoming community of thousands of people who know life with MS. I have been having Pins and needles in my feet and fingers/hands Severe cramps in my LEFT arm,hand and leg. when the neurosurgeon came to see me, he said although I did Sep 21, 2023 · Hi guys! I’m just wondering how other people feel after having ocrevus treatment. gunitamakowski 11 February 2025 18:39 1. Find peer support and advice on everything MS, from unusual symptoms to everyday life. Don’t get on here so often these days. MRI confirmed their Mar 10, 2025 · MS Society UK | Forum Understanding of MS. No health problems until now (age 27) Since Oct 2015 - Started off with a slight headache, pins Multiple Sclerosis – UK Limited, trading as MS-UK Company Number: 2842023. Feb 11, 2025 · MS Society UK | Forum. One doctor at the hospital said l have RRMS, relapsing MS because l had a great response to the steroid treatment, it felt like l was totally cured, he said if l had progressive MS l would not have had a great response to the steroids. This too rectified itself until 2012, and I went to boot camp. I am 59. 6 days ago · Hi I’m Tina new to the forum I have a date for a hip replacement I’m withering whether to go ahead as the medical staff can’t help with my decision Has anyone had a hip replacement and has drop foot and difficulty walking I’d feel better hearing from someone whose already had the op and did it make a difference Share MS experiences and ask general questions. Perhaps not yet widely available but Has anyone tried these Dec 26, 2024 · Hi All. MS is commonly diagnosed in people between the ages of 20 and 30 (1). Whether you're newly diagnosed, have had MS for a while or care for someone who does, there's something for you. (Blood tests showed very low iron and B12 - meds prescribed) Apr 2023: symptoms return, bloods still very low in iron Aug 16, 2018 · My first symptom was a slip and fall that caused me to break my right foot. Hank_Dogs 12 May 2025 12:29 1. Registered charity nos 1139257 / SC041990. MS Society UK | Forum. I have been on it for nearly 2 years. I was never deficient in B12, but had low levels. We're a mix of paid staff and volunteers, MS nurses, benefits and legal specialists, health and social care and fitness experts. We all know life with MS. 9: 110: Nov 20, 2018 · Therefore you can feel extra crappy with an infection or a virus, fatigue is likely to be worse, existing symptoms can be worse, which could be called a pseudo relapse. Life has been hectic and taking its toll! Ladies, can you tell me if any of you had a worsening of your MS symptoms with the menopause. MS is active way before we develop any noticeable symptoms. Dec 17, 2024 · Multiple Sclerosis – UK Limited, trading as MS-UK Company Number: 2842023. When things were moving fast or if too much was happening it would make me feel weird and I couldn Our free MS Helpline gives emotional support and information to everyone living with MS. Jun 14, 2021 · Am also taking CBD oil cheery flavour find it very good used it for about 2 wks finding it good though . Topic Replies 29 May 2025 Gabapentin withdrawal symptoms. If you’re newly diagnosed or want to ask about possible first symptoms, or if you’ve had Relapse Remit, Secondary or Primary Progressive MS for some time, a welcoming group of fellow MS sufferers is here to chat with you about MS symptoms, diagnosis and treatments. I fell again 4 years later when my leg “gave way a second time” and broke the same foot again. New diagnosis and before diagnosis. Saw MS nurse on 11th Jan who prescribed (via consultant) 5 days of oral steroids (5x100mg tablets for 5 days). Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. fatigue; numbness and tingling; loss of balance and dizziness; stiffness or spasms; tremor; pain; bladder problems; bowel trouble; vision Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition. Feb 26, 2025 · Hi all, started Kesimpta yesterday and I was surprised at how quickly the side effects cleared up. I now think that my MS only advances under high stress. My temporary solutions have been crunching ice, trying to reduce smoking (VERY difficult in times of MS-UK. The symptoms that occur depend on the site and severity of the lesions and this is why people with MS experience different symptoms at different times. I’ve not posted for a few yrs, but would like to know if any of you suffer from Burning Mouth syndrome during a flare up? I’ve been taking Fingolimod as a DMT for several yrs now, & at times my whole mouth & surrounding area, feels like it’s on fire. If you’re new or wondering if MS may be the cause of your symptoms you’re encouraged to… Clinical tools can help detect early, subtle symptoms of MS: Study; Childhood adversity tied to greater MS risk; quality of evidence low; MS patients in UK say they lack support to stay, thrive at 3 days ago · Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. It started when over a few days, the environment around me because very surreal and I couldn’t concentrate at all. Results came back with unfortunate news. I have been displaying symptoms this past year, as follows: Dec 2022: pins and needles in hands and feet, dull pain in fingers and toes, some mild shooting shock pains going up my legs, eye floaters. org. Mar 8, 2023 · MS Society UK | Forum. Join our friendly community of patients, caregivers, and researchers celebrating over 20 years of delivering hope through knowledge. Our forum is a welcoming community of thousands of people who know life with MS. The first day of injection for me was like having cold like symptoms and I became very tired and slept for a good few hours and had a bit numbness in the leg of the injection for a few days. ms-uk. May 27, 2025 · Hi everyone Since I last posted, I received a pretty urgent MRI of brain and spinal cord. We both did not think about MS at this stage Last month my symptoms came back but worse after i had a miscarriage and needed a D&C. For me tho, I’ve come to the point where they’re giving me more side effects than good effects, I think it’s now time to go it alone in the fight against further disability imho. Jan 3, 2018 · Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition. I had my 2nd full dose treatment yesterday and today I just feel completely wiped out. Having seen the Neuro-Ophthalmologist recently who prescribed ‘Trehapan’ which is far superior to Optrex (drops straight into the eye rather than spraying a mist onto the eyelids). Or it can cause an actual MS relapse. I have recently hit my 22nd Apr 23, 2012 · Hi, Sorry for the long post trying of offer as much info upfront as possible. Jun 29, 2024 · Hi everyone, I am a 40 year old woman in the UK. I hope you get over the Norovirus very soon. My wife, who doesn’t have MS but does a lot of ‘craft work’ involving e. Hank_Dogs 10 March 2025 14:37 1. I feel great / I think my immune system has been better than usual and the only side effect is I feel tired the day after the jab. MS is an autoimmune condition and you definitely don’t want some infection causing your immune system to go into attack mode resulting in not just attacks on the Covid or flu virus but Jul 25, 2013 · For me some of my symptoms started in Febuary of this year, But my doctor never found a cause. I wonder, could you help us and provide a link to The research papers that you have read and in particular the clinical trial. Yesterday I had my follow up appointment with the Feb 2, 2025 · What is driving me nuts currently is dry and itching eyes. The way the side effects were described I thought it was going to be like the AstraZeneca Covid vaccine but it was nowhere near as bad! Initially I felt weird and high, a little headache followed along with fatigue and about 6 hours later my bones hit as if I had flu but it passed after an hour Jul 27, 2021 · So I’ve been having symptoms for about 7 months now. 2: 471: 29 May 2025 No Warning Bowel Incontinence. For more information on all of the above please see the Jan 18, 2023 · Hi everyone I just wanted to share my recent experience having had a relapse and subsequent steroids. My symptoms came on about 10 weeks ago and haven’t improved which seems to match with late onset MS as well. Symptoms lasted around 6 weeks. ). The GP said they would change the injections to 12-weekly injections and that May 12, 2025 · MS Society UK | Forum. Part of the Brain and nerves category. They Jan 30, 2025 · By far the majority of people with MS across the world including the UK were diagnosed before Covid reared its nasty little head and before the vaccine. Topic Replies Views Activity; Antihistamine clemastine may worsen MS disease progression. If you do watch it, try and watch all of Jul 15, 2016 · Hi I have had rrms for 5 years now In the last few months some of my symptoms have felt much worse - the horrible leg pain and burning, feeling my leg is in a vice and lately my brain fog feels horrendous. Registered Charity Number: 1033731. We’re here Monday to Friday, 9am to 7pm except bank holidays on 0808 800 8000. After MS diagnosis I was told the B12 injections weren’t related to MS and I should now ask the GP to monitor my B12 levels. Topic Replies Views Activity; Your first symptoms - looking back. Oct 7, 2009 · Founded in 2004, MS People UK is a community website and discussion forum by and for people with Multiple Sclerosis as well as for friends, families, supporters and those interested in this disabling condition. Call the MS-UK Helpline 0800 783 0518. At times, the stiffness, muscle and joint pain is horrendous, but then it eases, (sometimes with the help of Symptoms of multiple sclerosis (MS) There are lots of possible symptoms of multiple sclerosis (MS). I have zero energy to do anything, and I just want to sleep. Jan 17, 2025 · I think - know that everyone on the forum tends to look out for each other in dealing with the complexities and ultimately little understood but devastating disease of MS. I’ve not been officially diagnosed but my GP said randomly in a conversation like it was nothing and said it could be MS. Some of the most common symptoms include: feeling extremely tired (fatigue) problems with your eyes or your vision, such as blurred vision or eye pain Mar 9, 2025 · I have severe outer hip and outer calf pain which is incredibly severe - the worst pain I have ever experienced. My situation is slightly odd in that I haven’t experienced any symptoms of MS, but was recently referred for an MRI to investigate any possible neurological reason for my tinnitus and slight hearing loss (they were looking to rule out acoustic neuroma, which is a kind of benign brain tumour). MS-UK is here for anyone affected by multiple sclerosis (MS), to empower them to live healthier and happier lives by improving the understanding of MS and providing support where it is needed most. It is estimated that there are more than 150,000 people in the UK diagnosed with MS. There are lots of symptoms that MS can cause, but not everyone will experience all of them. I took the full course 12th to 16th Jan. I Jan 31, 2024 · Very similar experience here - again I have very few MS symptoms but this was the recommended drug. lesions from a previous mri in 2014 which obviously I’m very pleased about as obviously my drugs are working Nov 7, 2015 · HI I will cut a long story short, as I am interested to see if anyone else has had a similar experience. The pain has steadily been increasing over a few months so I am now on paracetamol, codeine, and oramorph as well as Oct 29, 2013 · Okay, I’m trying again with a new thread. Symptom, treatment and advice from community members Read or ask questions in our MS discussion forums, covering topics such as treatment, unusual symptoms, coping, caregiving, recent research, and more! page 1 of 219 Learn about multiple sclerosis and talk openly with other MSers about your experiences. Whether it’s managing symptoms, accessing benefits, or simply seeking a friendly chat, we’re here for you. Consultant advised me before MRI scan that I was showing signs of early progressive? But still remained under RRMS diagnosis for now?! They also said to look at new medication instead of copaxone. At first, I thought I was relapsing, but the symptoms fluctuate. Relapse started on 4th Jan with severe vertigo upon movement of my eyes, accompanied by a strong electric shock feeling down my limbs. Anyone else have had a similar problem with Jan 28, 2025 · l have just been diagnosed with MS, lesions in spine and brain and see a neurologist tommorrow. Visit www. 405: 75887: Ms symptoms and mri scan May 11, 2021 · MS Society UK | Forum. Also, I’ve noticed around 2-3 weeks before my treatment is due, I get “old MS symptoms” back and I really struggle with them. Join our friendly community of patients, caregivers, and researchers celebrating Oct 27, 2024 · Hi- I have been referred to the neurologist by my GP for suspected MS. VAT Number: 632 2812 64 Our forum is a welcoming community of thousands of people who know life with MS. VAT Number: 632 2812 64 The MS-UK Helpline team are always here when you need them, offering information and emotional support. g focusing on near and small objects for a long time . Jun 15, 2012 · Hope everyone is doing as well as can be. I guess they looked over my symptoms because I was still a young man in high school- I'm too young for that disease lol. What are some of the common symptoms of MS? Some of the most common symptoms of multiple sclerosis are listed below. New lesions appeared on brain and spinal cord. Does not seem my GP can prescribe Trepapan, or similar, under the NHS so must be bought over the counter. Email info@ms-uk. easter and had an mri done recently. This wore off but I was left for tingling fingers for two weeks. Hope you had a good Christmas. g small stitches, crochet etc gets eye twitches quite often. In a recent MS-UK survey, when asked whether they experienced fatigue, 80 per cent of respondents answered yes, 17 per cent answered sometimes and only three per cent answered no. I was told they didn’t know what it was and given some oramorph. Foot drop shoes. Treatment Multiple Sclerosis Society (MS Society UK). THe other doctor said he thinks l have PPMS progressive MS We would like to show you a description here but the site won’t allow us. . I’m not going to put a link in, but I am going to recommend members watch a documentary film on Youtube titled Diagnosing and Treating Vitamin b12 Deficiency. V rough spell at. On this page you can find links to various multiple sclerosis forums and top tips on accessing digital communities safely. If you thought you knew about b12 deficiency and you thought your doctors knew, you were wrong. Symptoms and treatments. Aug 14, 2024 · Multiple Sclerosis – UK Limited, trading as MS-UK Company Number: 2842023. Dec 23, 2023 · Thinking that I could possibly have MS. Nov 7, 2024 · Before being diagnosed with Secondary Progressive MS age 59, my neurologist prescribed 8-weekly B12 injections for my neurological symptoms. Connect with others living with Multiple Sclerosis on the ms life forum page - a supportive space to share experiences, ask questions, and find real community. Whether you want to know more about diagnosis, symptoms, treatments, lifestyle adaptations, or anything else MS, you’ve come to the right place. I have been suffering with numerous back problems for about 5 years, in January 2015 my physio told me t go to a&e because of bladder problems. I’m just wondering if anyone Multiple sclerosis news, information, Read about MS symptoms. Everyone with the condition is affected differently. Won’t make us totally better but if it does something for us then it’s worth it xx Nov 16, 2021 · The MS nurse will show you how to take your injection, the first five weeks are dauting but it does get easier. Patient Forums for Multiple Sclerosis. This showed no new. Everyday living. Aug 19, 2024 · Fatigue is one of the most common symptoms of multiple sclerosis (MS) and is reported to affect three out of four people with MS at some point during their lives. I had. The urinary symptoms and the sensory symptoms returned, and I had to leave. I had b12 deficiency but was nearly diagnosed with MS. VAT Number: 632 2812 64 Multiple sclerosis news, information, Read about MS symptoms. Sep 30, 2015 · Well, I am undiagnosed, but my first suspicions arose in 2011 when i woke one day after a heavy night on the beer and felt almost paralysed. Methylene Blue (MB) - Your experiences. Here is my story, When I was 16 - pins and needles in my feet and hands - lasted 2 months I went to the neurologist at the time and had VEPs done, these must have come back normal as I was discharged from hospital with no further investigations. VAT Number: 632 2812 64 Dec 28, 2024 · I suppose that it’s possible that for people with MS the eye twitch is related but lots and lots of people get them - tiredness, eye strain from e. I am a 45 yr old male married with 3 kids, self employed and I am worried that I may have MS or some other Neurological problem, been to the Docs possibly only 3 times in my life before this occurred: My symptoms started approximately a year ago completely out of the blue when the middle fingers of both hands went Jan 22, 2016 · Hi everyone, Just looking for some advice/ opinions. 0: 24: 29 May 2025 Worse on Our forum is a welcoming community of thousands of people who know life with MS. a few weeks later i started to notice extreme fatigue, (normally very fit), fuzzy thinking, balance issues, eye pain, muscle pain, an episode of tinitus and vertigo. scu njqbuwyy lky jxnyvenw hcratzu bllx gpc pgk vmwtla xtibv